Saturday, April 28, 2012

Cocoa Beach, FL and a Mojo Update

By the time I got to Orlando last night I was exhausted. We took a shuttle down to Cocoa Beach, checked into the hotel and walked across the street to the Cocoa Beach Pier to grab some dinner. After a small glass of white wine (happy hour special was half off all alcoholic beverages and the wine glass was about half the size of a regular one!) I finally relaxed a bit. Dinner wasn't anything amazing - all the restaurants at this pier are owned by the same owner and they have one central kitchen. We split naked chicken wings, Bob had a steak, and I had a burger without the bun.

Walking back to the hotel the sunset was beautiful and Bob wanted a picture of me on the surfboard with the fake wave.

We spent the morning at the Ron Jon Resort listening to a sales pitch. In return the shuttle to and from Cocoa Beach was free, plus we got $75 cash. I thought that was a good deal.

As soon as McCormick Animal clinic opened I called to check on Mojo. Daniel, the guy taking care of the animals, was on the phone. The first thing he said is that Mojo is such a "happy dog" and when he let him out this morning he apparently walked up to everybody to greet them with "kisses" and by trying to climb on them. That's my boy! When Daniel told me this I was so relieved because it tells me that he is feeling better. Daniel also said the swelling is down a bit and Mojo seems to be feeling ok. So that was a huge relief plus we decided to go ahead and go on the cruise.

We spent the rest of the day relaxing, going for walks, shopping, and just taking it easy. Now we're going to do some laundry and spend the rest of the night in. Looking forward to getting away for a week and doing nothing but fun stuff. Our pet sitter will check on Mojo daily and will send us an email with an update. If I have to fly back I will but I am praying that Mojo will be feeling better every day now.

Friday, April 27, 2012

Update on My "Little" Boy

This is Mojo, my 10 year old Great Dane/American Bull mix who stole my heart the minute I saw him when he was about 5 months old. He is a sweet, sweet boy who has been through a lot in the last year to 15 months.

Yesterday I wrote about the trouble he has been having this week with a swollen anal gland.
Despite being on antibiotics and doing warm compresses he just wasn't getting better. While doing a warm compress yesterday morning I noticed that his left hind leg was swollen quite a bit. Within an hour it had gotten much worse. I called the vet and they told me not to do anything until I come in later to see Dr. McCormick.

Two o'clock didn't get there fast enough. His leg got even worse by the time I got to the vet. Dr. M did another rectal exam and said there's a lumbar sub-lymph node that is swollen and obstructing his rectum keeping him from moving his bowels. He said the leg swelling is edema and he felt that all of it, even the initial swollen anal gland, was due to Mojo's compromised lymph system (from lymphoma) and his immune system being run down from all the chemo. He called Blue Pearl to talk to Dr. Johnson, Mojo's oncologist, but she is out of town this week. The vet on staff that day, Dr. Holste, was in surgery so Dr. M sent me home and said he would call me when he hears back from them.

I had justgotten home when he called and said Dr. Holste would like to see Mojo and do an ultrasound. So I drove out to Blue Pearl and met with Dr. Holste. I explained what had been happening, she did a quick exam, then took him to run some tests. She said it could take two hours and she would call me when she is done. I drove to Target and wandered around but was too worried about Mojo and drove back to the clinic to wait there. She had actually just gotten done with some tests and called me in. I was not expecting to hear what she said. Mojo is out of remission, the cancer is back, and his lymph nodes from the belly down are all swollen. This is what was causing the swelling and she said eventually the other leg would swell as well. Here's a picture of what it looked like yesterday.

She said that she would like to administer L-Spar (sp?) which is the same chemo drug he got last year when we first started chemo. It made his lymph nodes go down within 12 to 24 hours. I said that was fine and went home to take care of Pepper while Mojo was at Blue Pearl. Dr. Holste had said she wanted to monitor Mojo for about 2 hours after chemo to make sure there is no anaphylactic shock from the chemo and to come back around 7:30 PM to pick him up.

I called Bob on the way home to fill him in and pretty much cried the entire time. When all this started end of last week I was not thinking cancer at all. It didn't even occur to me that what seemed like some constipation could be from him being out of remission.

The weather was getting worse and worse and as I was on my way to pick him up a tornado touched down about 5 miles south of the clinic. It was a totally crazy and horrible day all the way around.

This morning Mojo's leg was less swollen and his groin, which had gotten huge by last night, was reduced as well. He was also a bit happier but still unable to move his bowels. I took him back to see Dr. McCormick to get checked out and to discuss whether we should even go on vacation. Dr. McCormick said his leg is definitely less swollen and once the swelling goes down everywhere (including in his rectum) he should be able to have a bowel movement as well. He said he sees no reason for us to cancel the vacation. I asked what the odds are of Mojo not responding to the chemo this time and if that happens, how fast things would progress. Like Dr. Johnson he feels that he will respond well since he responded well the first time. He said if not, that he highly doubts that Mojo will go downhill so fast that they would have to put him to sleep before we get back. Of course there are no guarantees!

Bob and I decided that I would go ahead and fly out today and we’ll call the vet later today and tomorrow. If he is worse we will fly home. If he seems to be improving then we will go on the cruise. Our pet sitter will call the vet daily and send me an email with an update. Dr. McCormick also gave me his email address and said to email him directly. After he speaks with Dr. Johnson on Monday he will let me know if she suggests more treatment while we are gone and will get an ok from me via email.

I am not sure how I feel about our decision. It didn't seem necessary to cancel the vacation, but leaving Mojo there, looking at his sweet, confused face when I walked away without him, broke my heart. I cried the whole way home and between all the crying last night and this morning, and only sleeping about 4 crappy hours, I look and feel miserable. My head feels like it is going to explode, my eyes are red and burning, the heart racing has gotten much worse again, and I am emotionally and physically worn out. This is definitely not how I wanted to start a vacation and I definitely did not expect the cancer to return this fast.

Thursday, April 26, 2012

April 2012 Update

It's been almost two weeks since I got back from Seattle and I have seen some good changes. Dr. D added Custom Probiotics 11-Strain Formula to my treatment plan since I still had some and she says they are good probiotics. For a long time I could not tolerate any CP at all but now I am up to 1/4 of the adult dose a day, in addition to various ferments including Kombucha, plus Pro Calm, Acidophilus, and Supernatant. Just a few months ago I could barely tolerate a drop of Sauerkraut brine so that's a definite improvement.

Last week I had several days where I felt joy. There was no dark, gloomy feeling and I was able to just enjoy the day, be happy, and have fun, despite all the other nasty symptoms, including the daily, and very uncomfortable abdominal distention. For the longest time I felt that the negativity was out of my control and having those days where I didn't have to try or work very hard to think positive was proof that I am right.

On the days I felt more joy I also had more energy. I even did a mini-workout on a few days in addition to cleaning the house. That is a HUGE improvement for me and I am so looking forward to when I can work out on a regular basis again.

A few days before I went to Seattle I had started taking Ivermectin and Pyrentel Pamaote. On those two anti-parasitics I felt that I was even hungrier than before and I was craving sweets again. Luckily I am done with those and have been taking Albenza for three days now. The second day on Albenza I started getting a headache, yesterday it was worse than the day before and I also started feeling like I was getting a sore throat and an earache. This morning the headache is improved, but the throat pain and earache, mostly on the left side, are still there. I also have a runny nose and my teeth are sensitive to hot and cold only on the left side.

Shortly before ending my fast I started getting chest pain on the left side and my arms hurt sort of like they did after the blood donation last year. The pain wasn't bad but I was a bit concerned thinking it might be an issue with my heart. I had called CMC and since Dr. D was out I ended up talking to Dr. Z. She ordered a CMP and CBC and also asked me to get a stress EKG. I got the blood tests the next day and my electrolytes were fine. I still haven't gotten the stress EKG, but once I started eating, the chest pain improved and some days it even went away.

Monday and Tuesday this week I didn't get to eat all day and by mid-day the chest pain was back and worse than before. When I finally got to eat something in the evening the pain would go away after one or two hours. Dr. D thinks it's Babesia and not my heart itself (but she still wants me to get the stress EKG just to make sure) and said that it's very common with people who have Babs. The fact that it improved when I broke the fast and ate something those two nights also makes me think it's Babs/die off but like Dr. D I want to make sure that my heart is ok. I went to see a cardiologist on Monday and they had initially told me that they could probably do the stress EKG the next day, but they had to do a pre-cert with my insurance company first. So they had scheduled me for today but I never did hear back regarding my insurance coverage so I re-scheduled the stress EKG for 05.09.2012 since I am heading to Orlando tomorrow.

DH is at a conference in Orlando (since last Sunday) and we are meeting at the airport tomorrow. We are taking a shuttle down to Cocoa Beach and Sunday we are getting on a 7-Night Western Caribbean Cruise to celebrate our 10th anniversary. I am looking forward to it but I am also hoping the die off from Albenza and all the other stuff I am taking will subside a bit before I leave tomorrow or at least before we leave Sunday.

Our friend L is staying with the dogs while we are gone which I much prefer over them going to a kennel. Unfortunately Mojo is not doing so well this week. What seemed like just constipation turned out to be an infected and swollen anal gland. I took him to the vet Monday and Dr. McCormick drained it and put him on antibiotics. It was awful....poor baby was in so much pain and it broke my heart to see him hurting so much. Dr. McCormick said infected anal glands respond really well to abx treatment and that he should be back to normal by the time I go on vacation. Well, he's not back to normal. Right after the vet appointment he was finally able to move his bowels several times, and since then he has been back to having a hard time. I have been giving him the antibiotics, I increased his NuVet Pet tablets to strengthen his immune system, and yesterday I did several warm compresses, but just like before he tries very hard to have a bowel movement but nothing happens. I called the vet yesterday and they suggested that I bring him back in today. I was really hoping he didn't have to go back to the vet again and I am praying that he doesn't have to go through the same thing as he did last Monday. I am also worried about going on vacation tomorrow with him not feeling well. Praying that today will be a pain-free vet visit for Mojo and that he will be feeling great by the time I leave tomorrow.

Saturday, April 21, 2012

Coffee "Mousse"

I am still pretty limited with food at this point but every once in a while I want something dessert like. Nuts, honey, seeds, coconut flour, etc. are still out for me which presents a challenge. I can do butter but not too much and I am supposed to avoid egg whites but I can eat yolks. So I decided to adapt Bee's Fake Cream recipe and make a dessert out of it.

what you need:
  • 1/2 cup very hot brewed coffee (I used organic dark roast and brewed it relatively strong)
  • 1 rounded tablespoon unflavored Gelatin (I use Great Lakes)
  • 1/4 cup coconut oil (Nutiva)
  • 3 egg yolks
  • liquid stevia to taste
  • 2 cups ice cubes
what you do:
Pour hot coffee into blender. Add gelatin and blend at low speed. Add coconut oil, egg yolks, and stevia until well blended. Add ice cubes until mixture gels. With 2 cups of ice cubes it should be pretty "thick".

Monday, April 16, 2012

Slow Cooker Chicken Gizzards

I just got my new Hamilton Beach Slow Cooker in the mail last week so I wanted to try it out. Our old crock was smaller and had lead in it. This one supposedly doesn't. Let's hope that's true.

I still had a bag of chicken gizzards from Good Earth Farms and figured I use those for my first recipe in the slow cooker. I buy the gizzards mostly because I love the rendered chicken fat, but I love the gizzards themselves as well.

what you need:
  • 5 lb bag of chicken gizzards
  • 1 quart filtered water
  • 2-3 large tomatoes, cut into large chunks
  • 2 large onions, cut into large chunks
  • 3 green onions, green tops included, chopped 
  • 1/2 bunch of cilantro
  • 5 cloves of garlic, peeled and cut in half or quartered
  • 1 1/2 tablespoons cumin
  • 1 1/2 tablespoons paprika
  • 1 tablespoon chili powder
  • 2 tablespoons Celtic sea salt
  • 1 teaspoon black pepper
  • 1/2 - 1 tablespoon curry (depends on how curry-ish you like food)
  • 1/8 - 1/4 teaspoon ground cloves 
  • 1/2 tablespoon rosemary powder
  • 1/4 teaspoon thyme
what you do:
Place all ingredients in slow cooker. Turn on high until it starts bubbling, set to low and let it cook 6 to 8 hours or until chicken gizzards are tender. If you don't like mushy vegetables, add them about 20 to 30 minutes before cooking time is done. That's it. Enjoy...

ways to serve this dish:
  • as is by itself
  • with homemade sauerkraut (put the sauerkraut in the bowl with this "stew" - yum)
  • over cauliflower rice
  • over mashed fauxtatoes (regular or smoked)
  • with a salad
  • over steamed or baked sweet potatoes
This post was shared on Monday Mania, Fat Tuesday, Whole Food Wednesday, and Freaky Friday.

Saturday, April 14, 2012

Chuck, Ribs, Stew Meat, and T-Bone

I am finally back to normal amounts of food since breaking my fast last week Thursday and had the most amazing lunch today. Well, at least I thought it was amazing.

I had a slow roasted chuck roast in the freezer that I had prepared just like my slow roasted beef ribs which I took out and defrosted at 350 degrees in our toaster oven. I can't remember what I had spiced it with but it was good as is.

I also had some beef stew meat and rib meat frozen that was leftover from the last batch of beef bone broth I made. I threw it in a skillet with coconut oil and chopped onions and spiced all of it with salt, pepper, rosemary, oregano, chipotle chili pepper, chili pepper mix, and paprika.

I mixed a tiny bit of tomato paste into the beef/onion mixture above, added it to a bowl with some chuck roast and topped all of it with two fried egg yolks, and some Kerrygold butter. Yum!
I remembered to take a picture after I had eaten more than half of it.

DH ate some chuck roast as well and put the beef/onion mixture in some low carb tortillas with taco sauce and fried egg whites (I prefer yolks - he prefers whites).

Tonight we are grilling T-Bones marinated in olive oil, salt, and pepper. The T-Bones, roast, stew meat, and ribs were all from Mother Earth Meats. Love their meat/poultry.

Follow-Up Appointment Three with Dr. D in Kirkland

My last appointment with Dr. D yesterday went really well. I asked her how parasites cause someone's metabolism to slow down and she said (according to Dr. K), the parasites get all the good stuff from your food, while you are left with all the crap. She said the majority of people with parasites are actually overweight, not underweight, like most people think. I guess the way that makes sense to me is similar to when you starve yourself, constantly cutting calories, eventually the body will down regulate. Dunno if that's what she meant but I suppose that could be it.

A few weeks back I has asked her in an email if there is something I can do or take to bring my iron levels down since blood donation is out due to POTS. She replied that I could take Artemisinin so I asked her if she could muscle test me for it.

Next I got on the table and she muscle tested all of the supplements I was on from our previous visit as well as some foods. I had brought the following with me:
  • Kerrygold Butter
  • Ghee
  • Kefired Cream
  • Mayorga Organic Coffee
  • Avocado
  • Egg White
  • Egg Yolk
  • Fermented Cod Liver Oil
I tested good for all the foods except the egg white which was neutral. Incidentally I am not crazy about egg whites and they are also in the "neutral" section of the Lyme/KPU/Low Ox list she sent me.

When she told me that coffee tests good I mentioned that I will most likely switch to decaf since I am on very little caffeine now anyhow and she said to stick with regular coffee. According to Dr. D caffeine does have some benefits and decaf can have toxins, even if it's Swiss water process decaf. She said caffeine from coffee can benefit the liver and may even help to absorb my supplements better. Again, I love her!

For the past two weeks or so I had been considering increasing Naturethroid from one grain to two grains and reducing Cytomel from 75 mcg to 50 or 62.5 mcg. My body still seems to have a hard time with Cytomel and the result is more heart racing. My last FT3/RT3 ratio was 67.9 and it needs to be above 20 so I have a little bit of room for RT3 to go up. I did not mention this to Dr. D but when she muscle tested me for Naturethroid it tested really well and as possibly needing more yet when she muscle tested me for Cytomel and Cynomel it came up as sort of blocking and possibly needing less. I am afraid to make that change since I don't want to have RT3 issues again, but maybe it's the best thing to do. It sure would be nice to be off the beta blocker completely. 

Dr. Alina was in with us again for the muscle testing and once we were done they wrote everything up for me. Unfortunately I left my treatment plan at the clinic so can't really post it yet but will do so as soon as I get it. However, she did say that she wants me to start drinking Dr. K's Lyme cocktail daily which consists of water, grapefruit juice (the "recipe" called for 1/4 cup but she said I can reduce it to 1 tablespoon), Quintessence, Mimosa Pudica, Artemisinin powder, and Lipo- Health. She wants me to run this cocktail in an ultrasonic cleaner eventually and since I wanted to run my liposomal C through one anyhow I went ahead and just ordered this one. Dr. D said to start out with the cocktail just fixed in the blender and once I tolerate the full dose to run it through the ultrasonic cleaner because it can cause too much die off running it through the cleaner immediately. This cocktail is in addition to the other new items she prescribed the first two days and in addition to most of the supplements I am already on. There were a few that were blocking which I will also post when I get my treatment plan.

Dr. D said that the anti-parasitics are really good for me right now and that Alinia, the last one I am supposed to take, is going to be great IF I can tolerate it. She said the Babesia will not like Alinia at all and some patients get chest pain or tightness, nausea, vomiting and other serious symptoms. In case I have a pretty severe reaction, she gave me her email address and cell phone number and said to let her know immediately if I get any of those symptoms so we can decide together whether I should continue or not.

Going forward she wants to talk on the phone once a month and if I can, she wants me to come back in person in July. She said at that point I could see Dr. K along with her and it was up to me. I told her that I would leave it up to her and we could decide later. Her concern was that he would be booked already so she said to go ahead and make an appointment with him for July and if necessary we could cancel it. Her concern is that I wouldn't be ready for Dr. K yet. She said I have made great progress but if I am not far enough along then his treatment will be too advanced and it would just be a waste of time and money. But she feels that I will be ready to see him if I can make it through the Alinia treatment. Right now I am still on Ivermectin and Pyrantel Pamoate, on 4/22 I start on Albenza, and on 5/20 I start on Alinia, 500 mg, three times a day, for 20 days. I hope it goes well.

Treatment Plan

  1. Lyme nosode – follow package instructions.
  2. Lyme Cocktail – Mix the following ingredients in a blender. Drink half in the morning and half in the evening. After initial die off is over run 15 minutes in ultrasonic cleaner after mixing in blender.
    1. Quintessence - 6 dropperfuls
    2. Grapefruit Juice - 1 tablespoon
    3. Water - 1/4 cup
    4. Artemisinin - start with 200 mg, work up to 600 mg per day as tolerated.
    5. Lipo-Health - 1 teaspoo
    6. Mimosa Pudica - 1/2 teaspoon per day, start with 2 days perr week, work up to 5 days per week as tolerated.
  3. Garlic and TriQuench – add the following to a little water in nebulizer and inhale once daily
    1. TriQuench – two drops
    2. Allimax – five to ten drops
  4.  Anti-Parasitic Treamtent – take in order listed
    1. Biltricide – two tablets three times per day for two days. Pause two weeks and repeat once. Ideally start with full moon (started this on 4/6/2012)
    2. 12 mg Ivermecting four times a day and 1,000 mg Pyrantel Pamoate at bedtime 14 days
    3. 400 mg Albenza twice a day for 28 days
    4. 500 mg Alinia three times a day for 20 days
  5. Valtrex – 1000 mg once per day at bedtime for at least three months (may continue this longer due to high viral load).
  6. Cordy Chi - 2 capsules twice per day before meals.
  7. Rizol Gamma - 10 drops twice per day in a little water, gargle then swallow twice per day.
  8. Homeo-K BAB - 5 drops twice per day with other Homeo-K remedies
  9. Rectal implant – combine 1 scoop of BioPure arteminisin with one capsule of organic, freeze-dried garlic in a ¼ cup of warm water. Insert rectally at bedtime two nights per week, not on consecutive nights.
Endocrine and Organ/Glandular Support
  1. Diutrex – one tablet two to three times daily before or between meals.
  2. Drenatrophin PMG – two tablets three times per day before meals. Hold on tongue 5 to 10 seconds before swallowing.
  3. Cardiotrophin PMG – one tablet three times per day before meals with the Drenatrophin.
Detox Support
  1. PC Ecklonia Cava – six tablets per day at bedtime.
  2. CGF (liquid chlorella) – ½ teaspoon three times per day at least 15 minutes before meals.
  3. Hyaluronic Acid - 2 dropperfuls twice per day under tongue 15 minutes away from food.
  4. Galactose - 1/2 teaspoon twice per day in water.
  5. MSM - 1 heaping teaspoon in water with breakfast and lunch.
  6. Detoxamin suppositories – insert on rectally at bedtime once a week.
  7. Pascalite bentonite clay – one teaspoon twice per day mixed into juice or water, follow with 8 ounces water. Do this twice per day at least 15 minutes before meals.
Nutrient Support
  1. CORE – six tablets daily after a large meal.
  2. Vitamin D – 6,000 IU daily.
GI/Digestive Support
  1. ProCalm – four capsules per day at bedtime.
  2. Supernatant – two capsules twice per day after meals.
  3. Betaine HCl with Pepsin (Thorne) – two to three capsules at the beginning of each meal.
  4. Custom Probiotics 11-Strain Formula – work up to two adult scoops per day
  5. Zypan – two to three before a meal
Circulation Support
  1. Venex (bee venom ointment) - apply topically to skin over nech (thyroid) and back
Methylation Support
  1. Methyl B12 shots – inject 0.5 ml methylcobalamin (10mg/ml) just under the skin of the abdomen, thighs, or buttocks twice per week.
Adrenal Support
  1. Ribes Nigrum – 20 drops twice per day in a little water – hold in mouth for 10 seconds before swallowing. Take first in the morning and again early afternoon.
Sanum Remedies (I had these from Germany)
  1. Sanum remedies Mucokehl, Notakehl, and Fortakehl – 10 drops twice per day at least 20 minutes away from food.
Homeopathic Remedies (online from or directly from Germany)
  1. K-OXY – five drops twice per day on tongue.
  2. K-METHYL – five drops twice per day on tongue.
  3. K-MAF – five drops twice per day on tongue.
  4. K-ADH – five drops twice per day on tongue.
  5. K-Energy – five drops twice per day on tongue.
  1. Two colonics back to back once a week OR 3 coffee enemas a week plus 2 colonics back to back once a month

Thursday, April 12, 2012

Follow-Up Appointment Two with Dr. D in Kirkland

It was beautiful this morning unlike yesterday when it was cloudy and raining pretty much all day long. It's actually sunny today and I couldn't resist taking a short walk this morning in the neighborhood behind the hotel. After my appointment with Dr. D it was only 10:30 AM and I decided to take another walk. Below are some pictures from the park I went to which is less than a block from the doctor's office.

Must be nice to have a house backing to a quiet, beautiful park.

Now to my appointment with Dr. D. I mentioned that I have been urinating more again the last 4 or 5 days. When I first went back on Desmopressin about 2 weeks ago I actually managed to sleep through the night a few times without getting up to urinate. Last night, in comparison, I got up at 1 AM, 3:20 AM, and 5:30 AM and had to urinate each time. Not fun. At the same time, with increased salt intake I feel like I am retaining more fluid again which is evident in my swollen eye lids when I first wake up.

Dr. D said unfortunately when a person is chronically ill fluid and electrolyte balance sort of gets put on the back burner for a while because it's not vitally important. As patients heal, all that starts working on its own again. She did say to eat as much salt as I want to and I can use black tea bags on my eye lids to help remove toxins and get the swelling down.

I asked her about some of the foods listed as ok to eat on the Lyme/KPU/Low Oxalate food list that are listed as high oxalates on other lists. She said it has to do with the fact that this list is also specifically for people who have Lyme and KPU and also because they found that people were just severely limited when they were 100% strict on their list. So they found that the list of foods she provided was the best option they could come up with.

Since we were talking about the food list I told her that I finally quit drinking coffee when I saw that it is on the "foods to avoid list". I told her that I brought some coffee anyhow for muscle testing and asked if it's ok to drink it if I test ok for it even though it's on the list of foods to avoid. She said absolutely. I then started to explain that green tea makes me feel nauseated and she said she doesn't like tea anyhow because of the fluoride in it and one cup of coffee a day won't hurt me. I love my doctor!

I asked how many colonics I should be doing during parasite treatment. As I had already read from Dr. Klinghardt, she said 2 colonics a week back to back would be ideal. However, she said if I can do 3 coffee enemas a week on my own then I can get by with 2 colonics a month back to back. Much better.

Next I got on the table for some muscle testing. I had asked her to see if she could check me for excess histamine and mast cell issues. She did and said what I have is a condition that often occurs in patients with KPU which is actually low histamine. She explained that if my baseline is 1 for example and I get histamine at a level of 1, then my histamine level is now doubled and my body, which is already highly sensitive, just can't handle it and has a reaction. But if my baseline level were 100 for example then an additional histamine level of 1 is not going to impact me all that much. So she prescribed a homeopathic that will gradually increase my histamine levels. Also MaxiFlav which is quercetin and MSM. I believe she said MSM would help to detox my connective tissue. Below is the new, updated treatment plan. New items are bolded.

Histamine Regulation:
  1. Histamine Low Potency Homeopathic - 10 drops twice a day on tongue 15 minutes prior to food. Ideal to do this first thing AM and last at night.
  2. MaxiFlav - 2 capsules first in the morning and last at night.
Digestive Support
  1. Custom Probiotics 11-Strain Formula - 2 scoops a day in addition to existing probiotics.
Detox Support
  1. Hyaluronic Acid - 2 dropperfuls twice per day under tongue 15 minutes away from food.
  2. Galactose - 1/2 teaspoon twice per day in water.
  3. MSM - 1 heaping teaspoon in water with breakfast and lunch.
  1. Cordy Chi - 2 capsules twice per day before meals.
  2. Rizol Gamma - 10 drops twice per day in a little water, gargle then swallow twice per day.
  3. Homeo-K BAB - 5 drops twice per day with other Homeo-K remedies.
  1. Homeo-K Energy -  5 drops twice per day with other Homeo-K remedies.
After my walk this morning after the doc appointment I came back to the hotel and grabbed some lunch. At 12:30 I was back at the clinic for my steam sauna followed by a colonic. As usual the colonic was tough - lots of cramping and some mild nausea - but chatting with Desiree, who stayed with me for both of them, was great just like last time. We seem to have a lot in common and I could talk to her for hours. She said she was really glad to see that I was on her schedule because I have a special place in her heart. That made me feel good.

Now I am back at the hotel just hanging out. By the time I left the clinic it was cloudy and dark again and the temperature had dropped quiet a bit. So I am staying in just chilling. I am kind of worn out from the sauna and colonic anyhow.

I got back to the hotel again around 2:30 PM. It was still really nice outside but after the sauna and colonic I was pretty drained. Since I didn't take a shower before the two treatments I got cleaned up, got dressed and went to Metropolitan Market to pick up some food for dinner and also for the trip home tomorrow.

On a different note, I am even hungrier than usual and my sweet/carb cravings are off the charts since starting Ivermectin and Pyrantel Pamoate. I hope this won't continue the entire time I am taking anti-parasitics.

Wednesday, April 11, 2012

Follow-Up Appointment One with Dr. D in Kirkland

I got to Seattle yesterday around 7 PM, picked up my rental car and drove up to Kirkland, WA. I am staying at the Baymont Inn just like last time. Nothing fancy but it's cheap, relatively clean, and about 5 minutes from the doctor's office.

Before I start writing about the appointment earlier today I should mention that I started having chest pain on the left Friday a week ago. A few days later I started having pain in my left lower arm and in my left hand. This pain was very much like the pain I experienced after the blood donation last spring any time I took potassium. So I tried reducing my intake of potassium chloride but it didn't help. Next I tried stopping Vasopressin, since it can affect electrolyte balance but that did not help either. Finally I decided to call Dr. D but she was out and I ended up talking to Dr. A. She ordered some lab work (CMP, CBC, and thyroid) which I got first thing last Thursday and a stress EKG which I have not gotten yet. Sodium and potassium looked great, but some other things were off. WBC was low, EOS was elevated, ALT PHOS was low, and more.

So the first thing Dr. D and I discussed today was the pain in my chest and in my arms. The latter went away about two days after I broke my fast so maybe some of it was due to die off. Hard to say. I also started my anti-parasitics last Friday - I took Biltricide for two days and since Sunday I am on Ivermectin and Pyrantel Pamoate. I have to take both of those for 14 days then I start Albenza.

Dr. D then asked if I had any questions which I did. I had read that some organisms/biofilm like fat and was wondering if eating a high fat diet would make things worse. She said that is true and Dr. Steven Fry sometimes puts people on a low fat diet, but she said there are too many other health issues associated with eating a low fat diet that she is not in favor of a low fat diet, especially since I am on quite a few anti-microbials. She said she would prefer that I eat as much fat as I can tolerate as long as I stick to healthy fats like animal fats from pastured animals, coconut oil, butter, palm oil, etc.

I asked her if DPP IV really does help with gluten digestion, not because I want to start eating gluten, but as a preventetive measure if we go out to eat or on our upcoming cruise for example. She said that it definitely can be helpful and that is exactly when she would use it, but not for eating gluten on a regular basis.

I had also read that some organisms love hormones and having low hormone results could be an indication of the body down regulating hormones so bugs aren't being fed. My concern was with the fact that I use both progesterone cream and testosterone cream. She said that this is also true, but when a person is on anti-microbials it's good to replace the missing hormones to build them up a bit.

Next I mentioned that I still get a lot of itching from the detox deodorant. When I brought it up over the phone a few weeks ago she thought it might be due to metals being drawn to the skin and fungi going crazy eating the metals. She suggested putting coconut oil on my skin but it did not help. Actually, the itching got so bad, I sometimes wake up in the middle of the night, walk into the bathroom, and "scratch" myself with my dry skin brush. I also started getting small bumps on my skin. Dr. D said unfortunately that means I am most likely allergic to one of the herbs in the deodorant and to stop using it.

I mentioned that the abdominal distention seems worse than ever as does my never ending hunger, and that I am now also craving sweets since starting the anti-parasitics. She feels confident that the abdominal distention and hunger are from parasites, and the increased hunger and sweet cravings are most likely die off from the anti-parasitics (which is a good sign).

Dr. A had come in to join us and next they asked me to get on the table to see what's going on with my body using ART (Autonomic Response Testing). Dr. D said that I seem to be dealing with Babesia issues right now and it appears that the Babesia is causing the chest pain. Apparently this is very common for Babesia and often an EKG will look perfectly normal but she still wants me to go ahead and get it.

Parasites are also big for me right now and I tested good for all the anti-parasitic medication. She said I should have a little splurge on occasion and about 15 minutes later take my anti-microbials. Eating sweets draws bugs into the gut where the medications are active, so eating something sweet then taking meds will kill some bugs apparently. I also tested for needing more probiotics than I currently take.

Also, my liver is really struggling right now as are my kidneys. Below is my treatment plan for now. She said not to refill any of my existing supplements until we have tested them on Friday.

Treatment While in Kirkland
  1. IV Hepa Merz (for liver support - got this earlier today)
  2. O-Zone Steam Sauna followed by Colonic (scheduled for tomorrow)
  3. Cranial sacral with Dr. Beck (she is out so I am not getting this one)
Digestive Support
  1. Custom Probiotics 11-Strain Formula - 2 scopps a day in addition to existing probiotics
Detox Support
  1. Hyaluronic Acid - 2 dropperfuls twice per day under tongue 15 minutes away from food
  2. Galactose - 1/2 teaspoon twice per day in water
  1. Cordy Chi - 2 capsules twice per day before meals
  2. Rizol Gamma - 10 drops twice per day in a little water, gargle then swallow twice per day
  3. Homeo-K BAB - 5 drops twice per day with other Homeo-K remedies
  1. Homeo-K Energy -  5 drops twice per day with other Homeo-K remedies
Next appointment is tomorrow at 9:45 AM.

Saturday, April 7, 2012

I Broke My Fast

I made it 17 days and broke my fast on Thursday. The first few days of the fast were incredibly hard, then it got much easier, and then it was a struggle again. I think it got harder when I started drinking Kombucha because my first batch was finally done and I LOVE it. Although I know it is quite strong I couldn't resist drinking quite a bit of it. So last Monday I was feeling rather miserable and was tempted to break the fast, but that afternoon I got a colonic and felt much better afterward. So I decided to continue and it was much easier again.

I also finally stopped drinking coffee - again. Right now I am drinking oolong tea but I can't say I really like it. I tried blending coconut oil into it but that's not doing it for me.

Thursday for lunch I had beef bone broth, a soft boiled egg yolk, 2 oz Wild Planet Skipjack Light Tuna, and some mashed avocado. For dinner I had the same but instead of just mashed avocado I had Coconut-Lime Avocado Creme. It is such a simple and easy recipe yet I love the flavor combo.

Yesterday's lunch was more bone broth, an egg yolk, and Wild Planet Skipjack Light Tuna mashed with avocado and homemade Sauerkraut (sorry - the picture is kind of blurry).

This morning I wasn't going to eat breakfast. In fact, I was going to go back to intermittent fasting eating lunch and dinner only versus doing the leptin reset. However, I felt rather poorly either from too much Kombucha yesterday, too much Sauerkraut, and/or Biltricide so I had two chicken sausages that I had planned on eating for lunch. So today I will have just bone broth and an egg yolk for lunch. Dinner will be wild Alaskan salmon filet sauteed in tallow and Smoked Mushrooms.

I think I am over the initial caffeine withdrawal since I was down to half a cup of coffee in the AM anyhow, but I still miss the taste of coffee. Especially since I started blending it with CO.

Thursday, April 5, 2012

Review: Cuisinart Variable Speed Hand Blender

Sometime last year the chopper attachment of my immersion blender/whisk broke. It's a plastic immersion blender and I wanted to switch to stainless steel anyhow so rather than replace the chopper attachment (which would have been the cheapest option), I have been on the hunt for a stainless steel immersion blender. I finally decided on the Cuisinart Variable Speed Hand Blender with Chopper Attachment (HB-154PC1) and got it a few days ago.

Like most immersion blenders you have to hold down the power button for the unit to operate. However, this one has a low and high speed setting which is nice. The whisk is a bit wider than the whisk of the blender I had before and it's powerful. I made paleOMG's chocolate cake in a mug for DH and used the whisk to blend all the ingredients. It didn't take much for them to be blended well.

The chopper attachment holds 2 cups which is a decent size. I tried chopping an onion but put too much into the container. I filled it to the top with big onion pieces which resulted in liquid-y onions on the bottom and large chunks of onions on the top. Of course I read the instructions AFTER I tried this and it says to fill the container no more than 2/3 of the way when chopping foods. DUH! I also noticed that the speed of the chopper isn't all that fast even on the high setting.

The lid of the chopper attachment is hard to put on and take off. It sort of snaps into little grooves in the chopper bowl. Putting the lid on isn't too bad, but taking it back off sometimes takes me a while which is a hassle. The top part is rounded and smooth so it's hard to get a good grip on it. The little grooves on the chopper bowl are also hard to clean. DH didn't seem to have any problems with the lid however so maybe it's just me.

The bowl of the chopper attachment has 4 vertical ridges on the inside. These make it impossible to scrape the inside of the bowl with a spatula or scraper and therefore hard to get food out. They also make it hard to clean if you make something creamy like the Coconut-Lime Avocado Creme I made today for example.

The chopper blade has a circular "groove" (see arrow in picture - I know, you can't really see it) in the plastic part in which food gets stuck. Again, very hard to clean if you make something creamy. I had to use the spray hose of my kitchen sink to "blast" the Avocado Coconut Cream out of there.

So all in all I am not really happy with this hand blender and will most likely take it back to Costco. The problem is that I have not yet found another hand blender that gets good reviews, has stainless steel attachments, and is under $40. I would prefer not to spend more than that but the way it is looking right now, I may have to.

Coconut-Lime Avocado Creme

I love avocados and usually buy a net of 5 or 6 of them at Costco. They are the best avocados I have eaten so far and they are usually less expensive than at other grocery stores. Since I can't eat all of them before they go bad, although I buy them almost green, I usually mash them with a little bit of lime juice and salt, divide into glass jars, and freeze them.

While I am not crazy about lime or lemon in general, I do love the taste of this avocado mash. Sometimes I just eat it as is (after defrosting), and other times I add salsa and/or cilantro to make something more like guacamole. Today as I was mashing my avocados I was thinking it would be nice to have a thicker, more firm consistency so I came up with this very simple recipe.

what you need:
  • 5 oz avocado (peeled and deseeded - roughly 1 medium)
  • 1/2 tablespoon lime juice or lemon juice (just enough to keep it from turning brown but you can use more if you like the taste of lime/lemon)
  • salt to taste (I just sprinkled some Himalayan sea salt on it)
  • 2 tablespoons coconut oil, melted or very soft (I buy Nutiva)
what you do:
Place all ingredients in chopper and grind/puree until all ingredients are mixed well. I did not leave any chunks of avocado and the consistency was smooth and creamy although the coconut oil was starting to firm up with the cold avocado. 

Move to a bowl or storage container and refrigerate at least one hour. The consistency is now much firmer and it has a light coconutty taste to it which I love.